More information is trickling in and I wanted to pass it along here. I am so grateful to a complete stranger at an NGO in EE for tracking down information on Jacob/Henry and providing it to me. I continue to share it here in the hopes that some day, some where, it could help another child to live, and other families to continue to ask and get more information to help ensure the health of their children.
From the latest report, which included phone interviews with the EE doctors and a German specialist (I told you, this NGO is going way above and beyond to get me information), Jacob/Henry probably had esophageal strictures, and he had a problem with aspirating fluids. He should have had surgery shortly after birth. I don't know for how long this was known, so I will assume that it was not known (the strictures). When they did surgery to widen his esophagus, more problems developed, which is certainly a risk anywhere. One incision infected (noted in our report probably due to conditions in the hospital) and from there, everything went down hill.
What this points out to me, personally, in a very real way, is that information, specific medical information, needs to be shared with the medical profession in all EE countries. An attitude shift is underway, I'm sure slow in growing, but it is happening. But the medical advances we enjoy here need to be shared so needless deaths do not occur.
Stay tuned....
Mary
Oh, Mary, that must have been SO hard to hear. Been thinking about you and praying you are doing OK. God bless you for opening your broken heart up to another child who needs you just as desperately as Jacob did.
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