Saturday, December 31, 2011

Happy New Year

Well, the family has been all here for 2 weeks now, and we are settling into somewhat of a routine, which is comforting for everyone! Lots of medical appointments have been accomplished (including one trip to the ER when Deyan had a seizure on Christmas day...he is ok, and we are going to continue to watch for any additional seizure activity. If he has any more, we will visit a neurologist), and many more have been made for January into February (and March for Opthamology)
The weather has been mild off an on, allowing for some time to be outside for a while at least. Martin LOVES to be outside. Doesn't matter if it is cold or not, he likes outside. I know when Jacob first came home, he LOVED to be outside, even in the rain. I think it is just feeling these things after having never been experiencing anything like this. I don't do well in the cold, but the boys sure do love it!
We brought the porch swing frame into the basement and hung a toddler swing from it for indoor swinging time. We did this for 2 years with Jacob. It took him a month or more to finally feel comfortable sitting in the swing when it was hanging from the frame. He would sit in it on the floor, and even while I was holding it up (coul;dn't do that too long) but not on the frame. We figure he had been placed in it and left for a long period of time and didn't trust he could get down. So we put him in and took him out again, over and over, and eventually, he got to liking it.
Well, this time, Deyan LOVES the swing, and will swing as long as someone will push him. Martin will not even LOOK at the swing! He is such a scared, timid little boy. Right now, we are working on just having him look at the swing, and maybe push it empty.
I have an IKEA swing to hang in the basement from the ceiling, and the special bolts to hang it, but have not gotten anyone to do it yet. It is not in Jim's area of expertise, so we must contract this out. Jacob will love it when we get it hung.  ANd I know once Martin is over his fear, he will also love to swing.
We are getting a bedtime routine that seems to be working. Deyan falls asleep easily, in his crib, with no crying. Martin fights it tooth and nail. I cannot just leave him in the crib, as he will hit and scratch himself, so I am sitting with him (after both get some nighttimes rocking/snuggle time) until he falls asleep. He is not happy with the program at all, but will get used to it. Both sleep through the night, awakening anywhere from 5 to 7 am.
As the days inch by, Martin is showing his temper more and more. I'm glad he has one, as it is probably the only thing that has kept him going. He otherwise is so afraid of things. We have made their "world" pretty small by keeping in the family room mostly, and Martin wants to be out and about much more. We take them on short trips (went to get shoes for Martin, Deyan and Jacob the other day. Went to Stride Rite. I must say...the sales rep was SOOOO helpful. We got in and out, with 3 pairs of shoes, in less than 15 minutes, and a promise that during their spring buy one get one 1/2 off sale, if we call ahead, someone will come in before the store opens or stay after closing time, to accommodate us with no crowds. How nice is that??)  and practice walking up and down the steps for Martin, swing for Deyan, occasional outside for all, but other than that, we are in the family room, playing or chilling. 
Oops gotta cut this short. Martin is up from his nap. More hopefully soon, and I will ask Jim to help me with photos.
in the meantime, visit his blog for pictures and videos



  1. Craig says he can come and look at your IKEA swing to see if he can hang it. He hung our cuddle swing downstairs very successfully.

    Miss you!

  2. Hello from Reece's Rainbow! How are things going for you guys? And have you joined our After the Rainbow group yet? If not, please email me and I'll get you connected. Adoption is an amazing thing but it also brings its challenges! Sometimes it helps to talk to someone who has "been there". Please feel free to email me if you ever have questions or just need to talk.

    ~Rachel Whitmire
    Post-Adoption Care Coordinator
    Reece's Rainbow Down Syndrome Adoption Ministry